Updates and Surgery

I am doing great, praise God! I saw Dr. Rassam last week and he was back to his old self. A few visits ago he had changed his tune from saying I had a miraculous recovery, to saying we were just managing the cancer well. I have a little PTSD from all the bad news at this point, so whenever I walk into the place I am tense until after I see him. For the past two visits though, he has been back to normal. On both occasions he poked around on me and said, “I might start believing that you are actually cured of this too!”. This is the highest praise and confidence anyone could expect, I think.

I was sure he would send me for a PET scan, but wrong again. He had two types of cancer marker tests done. Both for breast cancer, but one was a new addition, for people who already went through treatment. The CA 27.29 test (the one I’ve had done before) has a range from normal people of between 0 and 38. Last time mine was 26.5. This time it was 14!!! Zero is not necessarily the goal, because it can be good to have a few. The CA 15.3 test is the new one and I think the range for normaly people is 0 to 25, and this was 10!!! Hooray!!!!

I was waiting to hear responses before mentioning this, but I think I will not get any…for those who wondered, I finally sent notes to some of the doctors who told me I’d be dead soon. I couldn’t get the right email for the one at Mayo so didn’t send his, but did get one to the genetic counselor there.  I told her about my miracle and she responded, “I’m so glad you’ve had such a positive reaction to chemo!”. That’s fine. I sent a nice note to Dr. Litton but she never responded at all.

I started Tamoxifen and so far, so good. I think it acts as a stimulant for me–I’m being more productive with less fatigue. Unfortunately, I’m unable to sleep at night, too. I’ve always struggled with sleep, but lately it had been a bit better. Now it’s taking me 2-3 hours to fall asleep. I see Dr. Rassam in a few weeks as a follow-up, so maybe he’ll prescribe me something to sleep if necessary. I feel extremely, outrageously blessed by the lack of unwanted side effects from the Tamoxifen. I know it takes longer for them to develop with some people, so please pray that mine will continue to be awesome.

I got a call from Dr. Rosenbaum’s office today. He is the plastic surgeon in Gainesville that I’m going to see about getting DIEP reconstruction. His assistant said his openings were filling up quickly, so she wanted to pencil me in for surgery now. NOW!!!! Not 1-2 years away like the more conservative doctor I saw here. NOW as in, over Thanksgiving or Christmas (the only 2 openings he has left this year)!!!!! I wanted the Thanksgiving one, because that would be basically a year from the time I was told I was dying to being entirely healed and reconstructed. However, I think Yaacov and my mom (the official helpers) will be more available over Christmas, so we’ll probably do that. It’ll still just be 13 months for all that.

For those of you who haven’t seen me, my hair is looking good. I’ve had two haircuts now, and the pixie cut style I have looks intentional. A lot of people even prefer it to my longer hair, but I think that’s because it’s so different. Strangers stop me all the time to compliment me, so that’s nice. I plan to still grow it out, then will look back at pictures and decide what was best.

I guess that’s it. “Through Him, therefore, let us constantly and at all times offer up to God a sacrifice of praise, which is the fruit of the lips that thankfully acknowledge and confess and glorify His name.” Heb 13:15

3 thoughts on “Updates and Surgery

  1. Hi,
    thanks for this useful information.How can cancer develop in really healthy people taking good care of themselves?
    A heavy smoker can develop lung cancer because of harmful chemicals overtime to his lungs. But sometimes, lung cancer can develop in a nonsmoker's lung. Or breast cancer can develop in a healthy woman's body.

    Don't get me wrong. I know that healthy people are much less likely to get cancer. However, sometimes cancer can develop in healthy people.
    John Keats:
    Cancer patient resources


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